A case for preference-sensitive decision timelines to aid shared decision-making in intensive care : need and possible application

Göcking, Beatrix; Gloeckler, Sophie; Ferrario, Andrea; Brandi, Giovanna; Glässel, Andrea; Biller-Andorno, Nikola

doi:10.3389/fdgth.2023.1274717

Please use this identifier to cite or link to this item: https://doi.org/10.21256/zhaw-29562

Publication type:	Article in scientific journal
Type of review:	Peer review (publication)
Title:	A case for preference-sensitive decision timelines to aid shared decision-making in intensive care : need and possible application
Authors:	Göcking, Beatrix Gloeckler, Sophie Ferrario, Andrea Brandi, Giovanna Glässel, Andrea Biller-Andorno, Nikola
et. al:	No
DOI:	10.3389/fdgth.2023.1274717 10.21256/zhaw-29562
Published in:	Frontiers in Digital Health
Volume(Issue):	5
Issue:	1274717
Issue Date:	Oct-2023
Publisher / Ed. Institution:	Frontiers Research Foundation
ISSN:	2673-253X
Language:	English
Subjects:	Advance care planning; Critical care; Decision aid; Shared decision-making; Subarachnoid hemorrhage; Surrogate decision-maker
Subject (DDC):	150: Psychology 616: Internal medicine and diseases
Abstract:	In the intensive care unit, it can be challenging to determine which interventions align with the patients' preferences since patients are often incapacitated and other sources, such as advance directives and surrogate input, are integral. Managing treatment decisions in this context requires a process of shared decision-making and a keen awareness of the preference-sensitive instances over the course of treatment. The present paper examines the need for the development of preference-sensitive decision timelines, and, taking aneurysmal subarachnoid hemorrhage as a use case, proposes a model of one such timeline to illustrate their potential form and value. First, the paper draws on an overview of relevant literature to demonstrate the need for better guidance to (a) aid clinicians in determining when to elicit patient preference, (b) support the drafting of advance directives, and (c) prepare surrogates for their role representing the will of an incapacitated patient in clinical decision-making. This first section emphasizes that highlighting when patient (or surrogate) input is necessary can contribute valuably to shared decision-making, especially in the context of intensive care, and can support advance care planning. As an illustration, the paper offers a model preference-sensitive decision timeline-whose generation was informed by existing guidelines and a series of interviews with patients, surrogates, and neuro-intensive care clinicians-for a use case of aneurysmal subarachnoid hemorrhage. In the last section, the paper offers reflections on how such timelines could be integrated into digital tools to aid shared decision-making.
URI:	https://digitalcollection.zhaw.ch/handle/11475/29562
Fulltext version:	Published version
License (according to publishing contract):	CC BY 4.0: Attribution 4.0 International
Departement:	School of Health Sciences
Organisational Unit:	Institute of Public Health (IPH)
Appears in collections:	Publikationen Gesundheit

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Göcking, B., Gloeckler, S., Ferrario, A., Brandi, G., Glässel, A., & Biller-Andorno, N. (2023). A case for preference-sensitive decision timelines to aid shared decision-making in intensive care : need and possible application. Frontiers in Digital Health, 5(1274717). https://doi.org/10.3389/fdgth.2023.1274717

Göcking, B. et al. (2023) ‘A case for preference-sensitive decision timelines to aid shared decision-making in intensive care : need and possible application’, Frontiers in Digital Health, 5(1274717). Available at: https://doi.org/10.3389/fdgth.2023.1274717.

B. Göcking, S. Gloeckler, A. Ferrario, G. Brandi, A. Glässel, and N. Biller-Andorno, “A case for preference-sensitive decision timelines to aid shared decision-making in intensive care : need and possible application,” Frontiers in Digital Health, vol. 5, no. 1274717, Oct. 2023, doi: 10.3389/fdgth.2023.1274717.

GÖCKING, Beatrix, Sophie GLOECKLER, Andrea FERRARIO, Giovanna BRANDI, Andrea GLÄSSEL und Nikola BILLER-ANDORNO, 2023. A case for preference-sensitive decision timelines to aid shared decision-making in intensive care : need and possible application. Frontiers in Digital Health. Oktober 2023. Bd. 5, Nr. 1274717. DOI 10.3389/fdgth.2023.1274717

Göcking, Beatrix, Sophie Gloeckler, Andrea Ferrario, Giovanna Brandi, Andrea Glässel, and Nikola Biller-Andorno. 2023. “A Case for Preference-Sensitive Decision Timelines to Aid Shared Decision-Making in Intensive Care : Need and Possible Application.” Frontiers in Digital Health 5 (1274717). https://doi.org/10.3389/fdgth.2023.1274717.

Göcking, Beatrix, et al. “A Case for Preference-Sensitive Decision Timelines to Aid Shared Decision-Making in Intensive Care : Need and Possible Application.” Frontiers in Digital Health, vol. 5, no. 1274717, Oct. 2023, https://doi.org/10.3389/fdgth.2023.1274717.