| Publication type: | Conference other |
| Type of review: | Not specified |
| Title: | Caring for people with dementia can lead to loneliness : a descriptive qualitative study |
| Authors: | Nemecek, Gabriela Stängle, Sabrina Fringer, André |
| et. al: | No |
| Conference details: | 16th International Family Nursing Conference (IFNA), Dublin, Ireland, 21-23 June 2023 |
| Issue Date: | Jun-2023 |
| Language: | English |
| Subjects: | Demenz; Angehörige |
| Subject (DDC): | 362: Health and social services 640: Home economics and family living |
| Abstract: | Background, Purpose: Caring for a loved one with dementia is challenging, especially in the advanced stage of disease. It can lead to a role shift, for example, from partner or daughter to family caregiver (FC). Being a FC is associated with loneliness, but it is unknown in which phase the loneliness sets in. To gain insight into the experiences of FC of people with dementia, to explore when the loneliness begins and to determine influencing factors. Methods: Design interpretative description, conducting semi-structured narrative interviews with ten FC (September and November 2020). The data were analyzed by means of open, axial, and selective coding. Results: Participants experienced loneliness as a loss in daily life in the following two phases: In the first phase, FC recognized their loved one's need for care in everyday life. Above all, the timing of the diagnosis represented a turning point, a realization of the change to come. In the second and main phase of change and adaptation, there was a decrease in communication, shifting of roles and redistribution of task. Corresponding to the increase of care, a decrease in self-care of the FC occurred. The FC learned to adapt their lives as well as the communication and joint activities to the new situation. They developed strategies to get along better in difficult situations with the loved one with dementia, to avoid arguments or to do something for themselves. Conclusion: This study shows that FC are at risk for loneliness when caring for a loved one with dementia and the loneliness can set in the phase of change and adaptation. In view of the resulting health consequences and the associated costs for the health care system, a preventive offer should be created to support FC in their role especially in that phase to protect them from loneliness. |
| URI: | https://digitalcollection.zhaw.ch/handle/11475/28243 |
| Fulltext version: | Published version |
| License (according to publishing contract): | Licence according to publishing contract |
| Departement: | School of Health Sciences |
| Organisational Unit: | Institute of Nursing (IPF) |
| Appears in collections: | Publikationen Gesundheit |
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Nemecek, G., Stängle, S., & Fringer, A. (2023, June). Caring for people with dementia can lead to loneliness : a descriptive qualitative study. 16th International Family Nursing Conference (IFNA), Dublin, Ireland, 21-23 June 2023.
Nemecek, G., Stängle, S. and Fringer, A. (2023) ‘Caring for people with dementia can lead to loneliness : a descriptive qualitative study’, in 16th International Family Nursing Conference (IFNA), Dublin, Ireland, 21-23 June 2023.
G. Nemecek, S. Stängle, and A. Fringer, “Caring for people with dementia can lead to loneliness : a descriptive qualitative study,” in 16th International Family Nursing Conference (IFNA), Dublin, Ireland, 21-23 June 2023, Jun. 2023.
NEMECEK, Gabriela, Sabrina STÄNGLE und André FRINGER, 2023. Caring for people with dementia can lead to loneliness : a descriptive qualitative study. In: 16th International Family Nursing Conference (IFNA), Dublin, Ireland, 21-23 June 2023. Conference presentation. Juni 2023
Nemecek, Gabriela, Sabrina Stängle, and André Fringer. 2023. “Caring for People with Dementia Can Lead to Loneliness : A Descriptive Qualitative Study.” Conference presentation. In 16th International Family Nursing Conference (IFNA), Dublin, Ireland, 21-23 June 2023.
Nemecek, Gabriela, et al. “Caring for People with Dementia Can Lead to Loneliness : A Descriptive Qualitative Study.” 16th International Family Nursing Conference (IFNA), Dublin, Ireland, 21-23 June 2023, 2023.
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