1. ZHAW digitalcollection
  2. Gesundheit
  3. Publikationen
  4. Publikationen Gesundheit
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dc.contributor.authorMahrer Imhof, Romy-
dc.contributor.authorJaggi, S.-
dc.contributor.authorBonomo, A.-
dc.contributor.authorHediger, Hannele-
dc.contributor.authorEggenschwiler, P.-
dc.contributor.authorKramer, G.-
dc.contributor.authorOberholzer, E.-
dc.date.accessioned2018-08-21T14:48:46Z-
dc.date.available2018-08-21T14:48:46Z-
dc.date.issued2013-03-
dc.identifier.issn1059-1311de_CH
dc.identifier.issn1532-2688de_CH
dc.identifier.urihttps://digitalcollection.zhaw.ch/handle/11475/9322-
dc.description.abstractPurpose: Epilepsy is not only a neurological disorder but may also have negative psychosocial consequences on people with epilepsy (PWE) and their relatives. Epilepsy has a major impact on quality of life (QoL) in PWE and family members. However, less is known about the impact of family support and family functioning on quality of life for PWE and family members and their interaction. Therefore, the study aimed to investigate factors that influence QoL in hospitalized adult patients with epilepsy and their relatives. Method: An explorative cross-sectional study has been conducted in a tertiary clinic in Switzerland. Hospitalized adult patients with epilepsy and their relatives were enrolled in the study. Subjective QoL as well as family support and family functioning were measured with patients and family members. Patients and their relatives assessed the patients' support need and their satisfaction with the care provided. In addition, patients were administered a disease-related HRQoL measure (QoLIED-36, Version 2). Backward stepwise multivariate linear regression analysis was used to explain variances in patients and relatives' subjective QoL. Results: One hundred and four dyads of patient and family member participated. Subjective QoL in patients and family members differed significantly, as did satisfaction with care delivery. In both groups family support contributed significantly to QoL. In the models 40% of the variance in QoL in patients and relatives could be explained. While the quality of life of the family members was affected by the patients' knowledge about the disease and the reason for their current hospitalization, patient QoL scores had no influence on the QoL of family members. The patients' QoL, however, depended significantly on the QoL of the family members. Conclusion: Interventions should address both PWE and family members and focus on the self-care improvement of PWE and the well-being and coping of family members. A patient-centred approach needs to include both the PWE and the relatives and address family support in order to alleviate stress in the patients and relatives alike.de_CH
dc.language.isoende_CH
dc.publisherElsevierde_CH
dc.relation.ispartofSeizure - European Journal of Epilepsyde_CH
dc.rightsLicence according to publishing contractde_CH
dc.subject.ddc616.8: Neurologie und Krankheiten des Nervensystemsde_CH
dc.titleQuality of life in adult patients with epilepsy and their family membersde_CH
dc.typeBeitrag in wissenschaftlicher Zeitschriftde_CH
dcterms.typeTextde_CH
zhaw.departementGesundheitde_CH
zhaw.organisationalunitInstitut für Pflege (IPF)de_CH
dc.identifier.doi10.1016/j.seizure.2012.11.012de_CH
zhaw.funding.euNode_CH
zhaw.issue2de_CH
zhaw.originated.zhawYesde_CH
zhaw.pages.end135de_CH
zhaw.pages.start128de_CH
zhaw.publication.statuspublishedVersionde_CH
zhaw.volume22de_CH
zhaw.publication.reviewPeer review (Publikation)de_CH
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Mahrer Imhof, R., Jaggi, S., Bonomo, A., Hediger, H., Eggenschwiler, P., Kramer, G., & Oberholzer, E. (2013). Quality of life in adult patients with epilepsy and their family members. Seizure - European Journal of Epilepsy, 22(2), 128–135. https://doi.org/10.1016/j.seizure.2012.11.012
Mahrer Imhof, R. et al. (2013) ‘Quality of life in adult patients with epilepsy and their family members’, Seizure - European Journal of Epilepsy, 22(2), pp. 128–135. Available at: https://doi.org/10.1016/j.seizure.2012.11.012.
R. Mahrer Imhof et al., “Quality of life in adult patients with epilepsy and their family members,” Seizure - European Journal of Epilepsy, vol. 22, no. 2, pp. 128–135, Mar. 2013, doi: 10.1016/j.seizure.2012.11.012.
MAHRER IMHOF, Romy, S. JAGGI, A. BONOMO, Hannele HEDIGER, P. EGGENSCHWILER, G. KRAMER und E. OBERHOLZER, 2013. Quality of life in adult patients with epilepsy and their family members. Seizure - European Journal of Epilepsy. März 2013. Bd. 22, Nr. 2, S. 128–135. DOI 10.1016/j.seizure.2012.11.012
Mahrer Imhof, Romy, S. Jaggi, A. Bonomo, Hannele Hediger, P. Eggenschwiler, G. Kramer, and E. Oberholzer. 2013. “Quality of Life in Adult Patients with Epilepsy and Their Family Members.” Seizure - European Journal of Epilepsy 22 (2): 128–35. https://doi.org/10.1016/j.seizure.2012.11.012.
Mahrer Imhof, Romy, et al. “Quality of Life in Adult Patients with Epilepsy and Their Family Members.” Seizure - European Journal of Epilepsy, vol. 22, no. 2, Mar. 2013, pp. 128–35, https://doi.org/10.1016/j.seizure.2012.11.012.


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