Prioritising key motivators and challenges influencing informal carers’ decisions for participating in randomised trials : an embedded study within A before and after trial (SWAT 55)

Smith, Valerie; Corry, Margarita; Devane, Declan; Treweek, Shaun; Hunter, Andrew; Grylka, Susanne; Hannon, Kathleen

doi:10.12688/hrbopenres.13125.2

Please use this identifier to cite or link to this item: https://doi.org/10.21256/zhaw-22712

Full metadata record

DC Field	Value	Language
dc.contributor.author	Smith, Valerie	-
dc.contributor.author	Corry, Margarita	-
dc.contributor.author	Devane, Declan	-
dc.contributor.author	Treweek, Shaun	-
dc.contributor.author	Hunter, Andrew	-
dc.contributor.author	Grylka, Susanne	-
dc.contributor.author	Hannon, Kathleen	-
dc.date.accessioned	2021-06-23T12:11:21Z	-
dc.date.available	2021-06-23T12:11:21Z	-
dc.date.issued	2021-05-28	-
dc.identifier.issn	2515-4826	de_CH
dc.identifier.uri	https://digitalcollection.zhaw.ch/handle/11475/22712	-
dc.description.abstract	Background: Family members, or others, often assume the role of informal (unpaid) carers of people with chronic illnesses. Care-giving, however, can impact profoundly on the quality of life of carers and can cause carer worry, stress and guilt. Implementing interventions that positively affect the lives of carers is important; however, carers as a group are often difficult to reach. We embedded a study within a pilot-feasibility trial of a mindfulness based intervention to determine and prioritise the key motivators and challenges influencing informal carers’ decisions for participating in a trial. Methods: We used a multi-method approach involving interviews with participants from a ‘host trial’ and data from systematic reviews to develop a survey that was distributed to informal carers in Ireland. The survey consisted of 28 motivator and 17 challenge statements. Participants rated how important they thought each statement was when deciding to take part in a trial on a 5-point Likert Scale. Mean scores and standard deviations were calculated for each statement and arranged in descending order to provide the priority lists. Results: Thirty-six carers responded to the survey. Helping to create awareness about carers was the top ranked motivator, followed by four study design statements related to the time at which the study occurs, the study location, format of delivery and venue. The least important motivator related to how carers were invited to take part a study. Difficulties in planning due to the caring role emerged as the most important challenge, followed by being unable to leave the care recipient on his/her own. Conclusions: Insight into decision-making for research participation will assist trial developers tailor trial processes for informal carer populations. We recommend that trialists should consider these motivators and challenges when designing future trials involving informal carers so as to enhance trial feasibility and success.	de_CH
dc.language.iso	en	de_CH
dc.publisher	Health Research Board	de_CH
dc.relation.ispartof	HRB Open Research	de_CH
dc.rights	http://creativecommons.org/licenses/by/4.0/	de_CH
dc.subject	Study within a trial	de_CH
dc.subject	Informal carers	de_CH
dc.subject	Survey research	de_CH
dc.subject	Trial participation	de_CH
dc.subject	Trial design	de_CH
dc.subject.ddc	610.73: Pflege	de_CH
dc.title	Prioritising key motivators and challenges influencing informal carers’ decisions for participating in randomised trials : an embedded study within A before and after trial (SWAT 55)	de_CH
dc.type	Beitrag in wissenschaftlicher Zeitschrift	de_CH
dcterms.type	Text	de_CH
zhaw.departement	Gesundheit	de_CH
zhaw.organisationalunit	Institut für Hebammenwissenschaft und reproduktive Gesundheit (IHG)	de_CH
dc.identifier.doi	10.12688/hrbopenres.13125.2	de_CH
dc.identifier.doi	10.21256/zhaw-22712	-
zhaw.funding.eu	No	de_CH
zhaw.issue	71	de_CH
zhaw.originated.zhaw	Yes	de_CH
zhaw.publication.status	publishedVersion	de_CH
zhaw.volume	3	de_CH
zhaw.publication.review	Open peer review	de_CH
zhaw.author.additional	No	de_CH
zhaw.display.portrait	Yes	de_CH
Appears in collections:	Publikationen Gesundheit

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Smith, V., Corry, M., Devane, D., Treweek, S., Hunter, A., Grylka, S., & Hannon, K. (2021). Prioritising key motivators and challenges influencing informal carers’ decisions for participating in randomised trials : an embedded study within A before and after trial (SWAT 55). HRB Open Research, 3(71). https://doi.org/10.12688/hrbopenres.13125.2

Smith, V. et al. (2021) ‘Prioritising key motivators and challenges influencing informal carers’ decisions for participating in randomised trials : an embedded study within A before and after trial (SWAT 55)’, HRB Open Research, 3(71). Available at: https://doi.org/10.12688/hrbopenres.13125.2.

V. Smith et al., “Prioritising key motivators and challenges influencing informal carers’ decisions for participating in randomised trials : an embedded study within A before and after trial (SWAT 55),” HRB Open Research, vol. 3, no. 71, May 2021, doi: 10.12688/hrbopenres.13125.2.

SMITH, Valerie, Margarita CORRY, Declan DEVANE, Shaun TREWEEK, Andrew HUNTER, Susanne GRYLKA und Kathleen HANNON, 2021. Prioritising key motivators and challenges influencing informal carers’ decisions for participating in randomised trials : an embedded study within A before and after trial (SWAT 55). HRB Open Research. 28 Mai 2021. Bd. 3, Nr. 71. DOI 10.12688/hrbopenres.13125.2

Smith, Valerie, Margarita Corry, Declan Devane, Shaun Treweek, Andrew Hunter, Susanne Grylka, and Kathleen Hannon. 2021. “Prioritising Key Motivators and Challenges Influencing Informal Carers’ Decisions for Participating in Randomised Trials : An Embedded Study within A before and after Trial (SWAT 55).” HRB Open Research 3 (71). https://doi.org/10.12688/hrbopenres.13125.2.

Smith, Valerie, et al. “Prioritising Key Motivators and Challenges Influencing Informal Carers’ Decisions for Participating in Randomised Trials : An Embedded Study within A before and after Trial (SWAT 55).” HRB Open Research, vol. 3, no. 71, May 2021, https://doi.org/10.12688/hrbopenres.13125.2.