Which outcome domains are important in palliative care and when? : an international expert consensus workshop, using the nominal group technique

de Wolf-Linder, Susanne; Dawkins, Marsha; Wicks, Francesca; Pask, Sophie; Eagar, Kathy; Evans, Catherine J; Higginson, Irene J; Murtagh, Fliss E M

doi:10.21256/zhaw-3223

Please use this identifier to cite or link to this item: https://doi.org/10.21256/zhaw-3223

Full metadata record

DC Field	Value	Language
dc.contributor.author	de Wolf-Linder, Susanne	-
dc.contributor.author	Dawkins, Marsha	-
dc.contributor.author	Wicks, Francesca	-
dc.contributor.author	Pask, Sophie	-
dc.contributor.author	Eagar, Kathy	-
dc.contributor.author	Evans, Catherine J	-
dc.contributor.author	Higginson, Irene J	-
dc.contributor.author	Murtagh, Fliss E M	-
dc.date.accessioned	2019-06-19T13:52:17Z	-
dc.date.available	2019-06-19T13:52:17Z	-
dc.date.issued	2019	-
dc.identifier.issn	0269-2163	de_CH
dc.identifier.issn	1477-030X	de_CH
dc.identifier.uri	https://digitalcollection.zhaw.ch/handle/11475/17337	-
dc.description.abstract	Background: When capturing patient-level outcomes in palliative care, it is essential to identify which outcome domains are most important and focus efforts to capture these, in order to improve quality of care and minimise collection burden. Aim: To determine which domains of palliative care are most important for measurement of outcomes, and the optimal time period over which these should be measured. Design: An international expert consensus workshop using nominal group technique. Data were analysed descriptively, and weighted according to ranking (1-5, lowest to highest priority) of domains. Participants’ rationales for their choices were analysed thematically. Setting/participants: In all, 33 clinicians and researchers working globally in palliative care outcome measurement participated. Two groups (n = 16; n = 17) answered one question each (either on domains or optimal timing). This workshop was conducted at the 9th World Research Congress of the European Association for Palliative Care in 2016. Results: Participants’ years of experience in palliative care and in outcome measurement ranged from 10.9 to 14.7 years and 5.8 to 6.4 years, respectively. The mean scores (weighted by rank) for the top-ranked domains were ‘overall well-being/quality of life’ (2.75), ‘pain’ (2.06), and ‘information needs/preferences’ (2.06), respectively. The palliative measure ‘Phase of Illness’ was recommended as the preferred measure of time period over which the domains were measured. Conclusion: The domains of ‘overall well-being/quality of life’, ‘pain’, and ‘information needs/preferences’ are recommended for regular measurement, assessed using ‘Phase of Illness’. International adoption of these recommendations will help standardise approaches to improving the quality of palliative care.	de_CH
dc.language.iso	en	de_CH
dc.publisher	Sage	de_CH
dc.relation.ispartof	Palliative Medicine	de_CH
dc.rights	http://creativecommons.org/licenses/by-nc/4.0/	de_CH
dc.subject	Palliative care	de_CH
dc.subject	Quality indicator	de_CH
dc.subject	Patient outcome assessment	de_CH
dc.subject	Patient reported outcome measure	de_CH
dc.subject	Consensus	de_CH
dc.subject.ddc	610.73: Pflege	de_CH
dc.title	Which outcome domains are important in palliative care and when? : an international expert consensus workshop, using the nominal group technique	de_CH
dc.type	Beitrag in wissenschaftlicher Zeitschrift	de_CH
dcterms.type	Text	de_CH
zhaw.departement	Gesundheit	de_CH
zhaw.organisationalunit	Institut für Pflege (IPF)	de_CH
dc.identifier.doi	10.21256/zhaw-3223	-
dc.identifier.doi	10.1177/0269216319854154	de_CH
zhaw.funding.eu	No	de_CH
zhaw.issue	8	de_CH
zhaw.originated.zhaw	Yes	de_CH
zhaw.pages.end	1068	de_CH
zhaw.pages.start	1058	de_CH
zhaw.publication.status	publishedVersion	de_CH
zhaw.volume	33	de_CH
zhaw.publication.review	Peer review (Publikation)	de_CH
Appears in collections:	Publikationen Gesundheit

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de Wolf-Linder, S., Dawkins, M., Wicks, F., Pask, S., Eagar, K., Evans, C. J., Higginson, I. J., & Murtagh, F. E. M. (2019). Which outcome domains are important in palliative care and when? : an international expert consensus workshop, using the nominal group technique. Palliative Medicine, 33(8), 1058–1068. https://doi.org/10.21256/zhaw-3223

de Wolf-Linder, S. et al. (2019) ‘Which outcome domains are important in palliative care and when? : an international expert consensus workshop, using the nominal group technique’, Palliative Medicine, 33(8), pp. 1058–1068. Available at: https://doi.org/10.21256/zhaw-3223.

S. de Wolf-Linder et al., “Which outcome domains are important in palliative care and when? : an international expert consensus workshop, using the nominal group technique,” Palliative Medicine, vol. 33, no. 8, pp. 1058–1068, 2019, doi: 10.21256/zhaw-3223.

DE WOLF-LINDER, Susanne, Marsha DAWKINS, Francesca WICKS, Sophie PASK, Kathy EAGAR, Catherine J EVANS, Irene J HIGGINSON und Fliss E M MURTAGH, 2019. Which outcome domains are important in palliative care and when? : an international expert consensus workshop, using the nominal group technique. Palliative Medicine. 2019. Bd. 33, Nr. 8, S. 1058–1068. DOI 10.21256/zhaw-3223

de Wolf-Linder, Susanne, Marsha Dawkins, Francesca Wicks, Sophie Pask, Kathy Eagar, Catherine J Evans, Irene J Higginson, and Fliss E M Murtagh. 2019. “Which Outcome Domains Are Important in Palliative Care and When? : An International Expert Consensus Workshop, Using the Nominal Group Technique.” Palliative Medicine 33 (8): 1058–68. https://doi.org/10.21256/zhaw-3223.

de Wolf-Linder, Susanne, et al. “Which Outcome Domains Are Important in Palliative Care and When? : An International Expert Consensus Workshop, Using the Nominal Group Technique.” Palliative Medicine, vol. 33, no. 8, 2019, pp. 1058–68, https://doi.org/10.21256/zhaw-3223.