Issue Date | Title | Involved Person(s) |
2018 | Living with a progressive neuromuscular disease : a grounded theory study of family experiences | Waldboth, Veronika; Patch, C.; Mahrer Imhof, Romy; Metcalfe, A. |
2018 | Families living with neuromuscular diseases : the impact on family life | Waldboth, Veronika; Patch, C.; Mahrer Imhof, Romy; Metcalfe, A. |
15-Jun-2017 | Living in a field of tension between development and degeneration : a grounded theory study of family transitions and neuromuscular disease | Waldboth, Veronika; Patch, C.; Mahrer Imhof, Romy; Metcalfe, A. |
Oct-2016 | Living a normal life in an extraordinary way : a systematic review investigating experiences of families of young people's transition into adulthood when affected by a genetic and chronic childhood condition | Waldboth, Veronika; Patch, C.; Mahrer Imhof, Romy; Metcalfe, A. |
20-Aug-2015 | Becoming an adult : experiences of individuals affected by chronic childhood disease and their families during transition into adulthood - a systematic literature review | Waldboth, Veronika; Patch, C.; Mahrer Imhof, Romy; Metcalfe, A. |