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Showing results 6 to 12 of 12 < previous 
Issue DateTitleInvolved Person(s)
2018Families living with neuromuscular diseases : the impact on family lifeWaldboth, Veronika; Patch, C.; Mahrer Imhof, Romy; Metcalfe, A.
2018Junge Personen mit progressiven neuromuskulären Erkrankungen : das Erleben innerhalb der FamilieWaldboth, Veronika; Mahrer Imhof, Romy
Oct-2016Living a normal life in an extraordinary way : a systematic review investigating experiences of families of young people's transition into adulthood when affected by a genetic and chronic childhood conditionWaldboth, Veronika; Patch, C.; Mahrer Imhof, Romy; Metcalfe, A.
15-Jun-2017Living in a field of tension between development and degeneration : a grounded theory study of family transitions and neuromuscular diseaseWaldboth, Veronika; Patch, C.; Mahrer Imhof, Romy; Metcalfe, A.
2018Living with a progressive neuromuscular disease : a grounded theory study of family experiencesWaldboth, Veronika; Patch, C.; Mahrer Imhof, Romy; Metcalfe, A.
2019Psychoeducative and relationship-centered interventions for families living with neuromuscular diseases during the affected young person's transition into adulthood : a meta-synthesisWaldboth, Veronika; Reichart, Christine; Grädel Messerli, Barbara
12-Jan-2021The family transition experience when living with childhood neuromuscular disease : a grounded theory studyWaldboth, Veronika; Patch, Christine; Mahrer-Imhof, Romy; Metcalfe, Alison