Please use this identifier to cite or link to this item: https://doi.org/10.21256/zhaw-27059
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dc.contributor.authorGöcking, Beatrix-
dc.contributor.authorBiller-Andorno, Nikola-
dc.contributor.authorBrandi, Giovanna-
dc.contributor.authorGloeckler, Sophie-
dc.contributor.authorGlässel, Andrea-
dc.date.accessioned2023-02-17T10:07:05Z-
dc.date.available2023-02-17T10:07:05Z-
dc.date.issued2023-02-11-
dc.identifier.issn1660-4601de_CH
dc.identifier.issn1661-7827de_CH
dc.identifier.urihttps://digitalcollection.zhaw.ch/handle/11475/27059-
dc.description.abstractBackground: Exploring the experience and impact of aneurysmal subarachnoid hemorrhage (aSAH) from three perspectives, that of those directly affected (AFs), their next of kin (NoK), and treating clinicians, is a way to support and empower others to make informed medical decisions. Methods: In a Swiss neurosurgical intensive care unit (ICU), eleven semi-structured interviews were conducted as part of a Database of Individual Patient Experiences (DIPEx) pilot project and thematically analyzed. Interviews were held with two clinicians, five people experiencing aSAH, and four NoK 14–21 months after the bleeding event. Results: Qualitative analysis revealed five main themes from the perspective of clinicians: emergency care, diagnosis and treatment, outcomes, everyday life in the ICU, and decision-making; seven main themes were identified for AFs and NoK: the experience of the aSAH, diagnosis and treatment, outcomes, impact on loved ones, identity, faith, religion and spirituality, and decision-making. Perspectives on decision-making were compared, and, whereas clinicians tended to focus their attention on determining treatment, AFs and NoK valued participation in shared decision-making processes. Conclusions: Overall, aSAH was perceived as a life-threatening event with various challenges depending on severity. The results suggest the need for tools that aid decision-making and better prepare AFs and NoK using accessible means and at an early stage.de_CH
dc.language.isoende_CH
dc.publisherMDPIde_CH
dc.relation.ispartofInternational Journal of Environmental Research and Public Healthde_CH
dc.rightshttp://creativecommons.org/licenses/by/4.0/de_CH
dc.subjectAneurysmal subarachnoid hemorrhage (aSAH)de_CH
dc.subjectBrain damagede_CH
dc.subjectSemi-structured interviewde_CH
dc.subjectNarrativede_CH
dc.subjectDIPExde_CH
dc.subjectThematical analysisde_CH
dc.subjectDecision-makingde_CH
dc.subjectIndividual experiencede_CH
dc.subjectQualitative researchde_CH
dc.subject.ddc616.8: Neurologie und Krankheiten des Nervensystemsde_CH
dc.titleAneurysmal subarachnoid hemorrhage and clinical decision-making : a qualitative pilot study exploring perspectives of those directly affected, their next of kin, and treating cliniciansde_CH
dc.typeBeitrag in wissenschaftlicher Zeitschriftde_CH
dcterms.typeTextde_CH
zhaw.departementGesundheitde_CH
zhaw.organisationalunitInstitut für Public Health (IPH)de_CH
dc.identifier.doi10.3390/ijerph20043187de_CH
dc.identifier.doi10.21256/zhaw-27059-
zhaw.funding.euNode_CH
zhaw.issue4de_CH
zhaw.originated.zhawYesde_CH
zhaw.pages.start3187de_CH
zhaw.publication.statuspublishedVersionde_CH
zhaw.volume20de_CH
zhaw.publication.reviewPeer review (Publikation)de_CH
zhaw.author.additionalNode_CH
zhaw.display.portraitYesde_CH
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Göcking, B., Biller-Andorno, N., Brandi, G., Gloeckler, S., & Glässel, A. (2023). Aneurysmal subarachnoid hemorrhage and clinical decision-making : a qualitative pilot study exploring perspectives of those directly affected, their next of kin, and treating clinicians. International Journal of Environmental Research and Public Health, 20(4), 3187. https://doi.org/10.3390/ijerph20043187
Göcking, B. et al. (2023) ‘Aneurysmal subarachnoid hemorrhage and clinical decision-making : a qualitative pilot study exploring perspectives of those directly affected, their next of kin, and treating clinicians’, International Journal of Environmental Research and Public Health, 20(4), p. 3187. Available at: https://doi.org/10.3390/ijerph20043187.
B. Göcking, N. Biller-Andorno, G. Brandi, S. Gloeckler, and A. Glässel, “Aneurysmal subarachnoid hemorrhage and clinical decision-making : a qualitative pilot study exploring perspectives of those directly affected, their next of kin, and treating clinicians,” International Journal of Environmental Research and Public Health, vol. 20, no. 4, p. 3187, Feb. 2023, doi: 10.3390/ijerph20043187.
GÖCKING, Beatrix, Nikola BILLER-ANDORNO, Giovanna BRANDI, Sophie GLOECKLER und Andrea GLÄSSEL, 2023. Aneurysmal subarachnoid hemorrhage and clinical decision-making : a qualitative pilot study exploring perspectives of those directly affected, their next of kin, and treating clinicians. International Journal of Environmental Research and Public Health. 11 Februar 2023. Bd. 20, Nr. 4, S. 3187. DOI 10.3390/ijerph20043187
Göcking, Beatrix, Nikola Biller-Andorno, Giovanna Brandi, Sophie Gloeckler, and Andrea Glässel. 2023. “Aneurysmal Subarachnoid Hemorrhage and Clinical Decision-Making : A Qualitative Pilot Study Exploring Perspectives of Those Directly Affected, Their next of Kin, and Treating Clinicians.” International Journal of Environmental Research and Public Health 20 (4): 3187. https://doi.org/10.3390/ijerph20043187.
Göcking, Beatrix, et al. “Aneurysmal Subarachnoid Hemorrhage and Clinical Decision-Making : A Qualitative Pilot Study Exploring Perspectives of Those Directly Affected, Their next of Kin, and Treating Clinicians.” International Journal of Environmental Research and Public Health, vol. 20, no. 4, Feb. 2023, p. 3187, https://doi.org/10.3390/ijerph20043187.


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