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https://doi.org/10.21256/zhaw-27059| Publikationstyp: | Beitrag in wissenschaftlicher Zeitschrift |
| Art der Begutachtung: | Peer review (Publikation) |
| Titel: | Aneurysmal subarachnoid hemorrhage and clinical decision-making : a qualitative pilot study exploring perspectives of those directly affected, their next of kin, and treating clinicians |
| Autor/-in: | Göcking, Beatrix Biller-Andorno, Nikola Brandi, Giovanna Gloeckler, Sophie Glässel, Andrea |
| et. al: | No |
| DOI: | 10.3390/ijerph20043187 10.21256/zhaw-27059 |
| Erschienen in: | International Journal of Environmental Research and Public Health |
| Band(Heft): | 20 |
| Heft: | 4 |
| Seite(n): | 3187 |
| Erscheinungsdatum: | 11-Feb-2023 |
| Verlag / Hrsg. Institution: | MDPI |
| ISSN: | 1660-4601 1661-7827 |
| Sprache: | Englisch |
| Schlagwörter: | Aneurysmal subarachnoid hemorrhage (aSAH); Brain damage; Semi-structured interview; Narrative; DIPEx; Thematical analysis; Decision-making; Individual experience; Qualitative research |
| Fachgebiet (DDC): | 616.8: Neurologie und Krankheiten des Nervensystems |
| Zusammenfassung: | Background: Exploring the experience and impact of aneurysmal subarachnoid hemorrhage (aSAH) from three perspectives, that of those directly affected (AFs), their next of kin (NoK), and treating clinicians, is a way to support and empower others to make informed medical decisions. Methods: In a Swiss neurosurgical intensive care unit (ICU), eleven semi-structured interviews were conducted as part of a Database of Individual Patient Experiences (DIPEx) pilot project and thematically analyzed. Interviews were held with two clinicians, five people experiencing aSAH, and four NoK 14–21 months after the bleeding event. Results: Qualitative analysis revealed five main themes from the perspective of clinicians: emergency care, diagnosis and treatment, outcomes, everyday life in the ICU, and decision-making; seven main themes were identified for AFs and NoK: the experience of the aSAH, diagnosis and treatment, outcomes, impact on loved ones, identity, faith, religion and spirituality, and decision-making. Perspectives on decision-making were compared, and, whereas clinicians tended to focus their attention on determining treatment, AFs and NoK valued participation in shared decision-making processes. Conclusions: Overall, aSAH was perceived as a life-threatening event with various challenges depending on severity. The results suggest the need for tools that aid decision-making and better prepare AFs and NoK using accessible means and at an early stage. |
| URI: | https://digitalcollection.zhaw.ch/handle/11475/27059 |
| Volltext Version: | Publizierte Version |
| Lizenz (gemäss Verlagsvertrag): | CC BY 4.0: Namensnennung 4.0 International |
| Departement: | Gesundheit |
| Organisationseinheit: | Institut für Public Health (IPH) |
| Enthalten in den Sammlungen: | Publikationen Gesundheit |
Dateien zu dieser Ressource:
| Datei | Beschreibung | Größe | Format | |
|---|---|---|---|---|
| 2023_Goecking-etal_Aneurysmal-subarachnoid-hemorrhage-clinical-decision-making_ijerph.pdf | 773.34 kB | Adobe PDF |  Öffnen/Anzeigen |
Zur Langanzeige
Göcking, B., Biller-Andorno, N., Brandi, G., Gloeckler, S., & Glässel, A. (2023). Aneurysmal subarachnoid hemorrhage and clinical decision-making : a qualitative pilot study exploring perspectives of those directly affected, their next of kin, and treating clinicians. International Journal of Environmental Research and Public Health, 20(4), 3187. https://doi.org/10.3390/ijerph20043187
Göcking, B. et al. (2023) ‘Aneurysmal subarachnoid hemorrhage and clinical decision-making : a qualitative pilot study exploring perspectives of those directly affected, their next of kin, and treating clinicians’, International Journal of Environmental Research and Public Health, 20(4), p. 3187. Available at: https://doi.org/10.3390/ijerph20043187.
B. Göcking, N. Biller-Andorno, G. Brandi, S. Gloeckler, and A. Glässel, “Aneurysmal subarachnoid hemorrhage and clinical decision-making : a qualitative pilot study exploring perspectives of those directly affected, their next of kin, and treating clinicians,” International Journal of Environmental Research and Public Health, vol. 20, no. 4, p. 3187, Feb. 2023, doi: 10.3390/ijerph20043187.
GÖCKING, Beatrix, Nikola BILLER-ANDORNO, Giovanna BRANDI, Sophie GLOECKLER und Andrea GLÄSSEL, 2023. Aneurysmal subarachnoid hemorrhage and clinical decision-making : a qualitative pilot study exploring perspectives of those directly affected, their next of kin, and treating clinicians. International Journal of Environmental Research and Public Health. 11 Februar 2023. Bd. 20, Nr. 4, S. 3187. DOI 10.3390/ijerph20043187
Göcking, Beatrix, Nikola Biller-Andorno, Giovanna Brandi, Sophie Gloeckler, and Andrea Glässel. 2023. “Aneurysmal Subarachnoid Hemorrhage and Clinical Decision-Making : A Qualitative Pilot Study Exploring Perspectives of Those Directly Affected, Their next of Kin, and Treating Clinicians.” International Journal of Environmental Research and Public Health 20 (4): 3187. https://doi.org/10.3390/ijerph20043187.
Göcking, Beatrix, et al. “Aneurysmal Subarachnoid Hemorrhage and Clinical Decision-Making : A Qualitative Pilot Study Exploring Perspectives of Those Directly Affected, Their next of Kin, and Treating Clinicians.” International Journal of Environmental Research and Public Health, vol. 20, no. 4, Feb. 2023, p. 3187, https://doi.org/10.3390/ijerph20043187.
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