Please use this identifier to cite or link to this item: https://doi.org/10.21256/zhaw-27059
Publication type: Article in scientific journal
Type of review: Peer review (publication)
Title: Aneurysmal subarachnoid hemorrhage and clinical decision-making : a qualitative pilot study exploring perspectives of those directly affected, their next of kin, and treating clinicians
Authors: Göcking, Beatrix
Biller-Andorno, Nikola
Brandi, Giovanna
Gloeckler, Sophie
Glässel, Andrea
et. al: No
DOI: 10.3390/ijerph20043187
10.21256/zhaw-27059
Published in: International Journal of Environmental Research and Public Health
Volume(Issue): 20
Issue: 4
Page(s): 3187
Issue Date: 11-Feb-2023
Publisher / Ed. Institution: MDPI
ISSN: 1660-4601
1661-7827
Language: English
Subjects: Aneurysmal subarachnoid hemorrhage (aSAH); Brain damage; Semi-structured interview; Narrative; DIPEx; Thematical analysis; Decision-making; Individual experience; Qualitative research
Subject (DDC): 616.8: Neurology, diseases of nervous system
Abstract: Background: Exploring the experience and impact of aneurysmal subarachnoid hemorrhage (aSAH) from three perspectives, that of those directly affected (AFs), their next of kin (NoK), and treating clinicians, is a way to support and empower others to make informed medical decisions. Methods: In a Swiss neurosurgical intensive care unit (ICU), eleven semi-structured interviews were conducted as part of a Database of Individual Patient Experiences (DIPEx) pilot project and thematically analyzed. Interviews were held with two clinicians, five people experiencing aSAH, and four NoK 14–21 months after the bleeding event. Results: Qualitative analysis revealed five main themes from the perspective of clinicians: emergency care, diagnosis and treatment, outcomes, everyday life in the ICU, and decision-making; seven main themes were identified for AFs and NoK: the experience of the aSAH, diagnosis and treatment, outcomes, impact on loved ones, identity, faith, religion and spirituality, and decision-making. Perspectives on decision-making were compared, and, whereas clinicians tended to focus their attention on determining treatment, AFs and NoK valued participation in shared decision-making processes. Conclusions: Overall, aSAH was perceived as a life-threatening event with various challenges depending on severity. The results suggest the need for tools that aid decision-making and better prepare AFs and NoK using accessible means and at an early stage.
URI: https://digitalcollection.zhaw.ch/handle/11475/27059
Fulltext version: Published version
License (according to publishing contract): CC BY 4.0: Attribution 4.0 International
Departement: School of Health Sciences
Organisational Unit: Institute of Public Health (IPH)
Appears in collections:Publikationen Gesundheit

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Göcking, B., Biller-Andorno, N., Brandi, G., Gloeckler, S., & Glässel, A. (2023). Aneurysmal subarachnoid hemorrhage and clinical decision-making : a qualitative pilot study exploring perspectives of those directly affected, their next of kin, and treating clinicians. International Journal of Environmental Research and Public Health, 20(4), 3187. https://doi.org/10.3390/ijerph20043187
Göcking, B. et al. (2023) ‘Aneurysmal subarachnoid hemorrhage and clinical decision-making : a qualitative pilot study exploring perspectives of those directly affected, their next of kin, and treating clinicians’, International Journal of Environmental Research and Public Health, 20(4), p. 3187. Available at: https://doi.org/10.3390/ijerph20043187.
B. Göcking, N. Biller-Andorno, G. Brandi, S. Gloeckler, and A. Glässel, “Aneurysmal subarachnoid hemorrhage and clinical decision-making : a qualitative pilot study exploring perspectives of those directly affected, their next of kin, and treating clinicians,” International Journal of Environmental Research and Public Health, vol. 20, no. 4, p. 3187, Feb. 2023, doi: 10.3390/ijerph20043187.
GÖCKING, Beatrix, Nikola BILLER-ANDORNO, Giovanna BRANDI, Sophie GLOECKLER und Andrea GLÄSSEL, 2023. Aneurysmal subarachnoid hemorrhage and clinical decision-making : a qualitative pilot study exploring perspectives of those directly affected, their next of kin, and treating clinicians. International Journal of Environmental Research and Public Health. 11 Februar 2023. Bd. 20, Nr. 4, S. 3187. DOI 10.3390/ijerph20043187
Göcking, Beatrix, Nikola Biller-Andorno, Giovanna Brandi, Sophie Gloeckler, and Andrea Glässel. 2023. “Aneurysmal Subarachnoid Hemorrhage and Clinical Decision-Making : A Qualitative Pilot Study Exploring Perspectives of Those Directly Affected, Their next of Kin, and Treating Clinicians.” International Journal of Environmental Research and Public Health 20 (4): 3187. https://doi.org/10.3390/ijerph20043187.
Göcking, Beatrix, et al. “Aneurysmal Subarachnoid Hemorrhage and Clinical Decision-Making : A Qualitative Pilot Study Exploring Perspectives of Those Directly Affected, Their next of Kin, and Treating Clinicians.” International Journal of Environmental Research and Public Health, vol. 20, no. 4, Feb. 2023, p. 3187, https://doi.org/10.3390/ijerph20043187.


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