Perspectives of patients, family caregivers and health professionals on the use of outcome measures in palliative care and lessons for implementation : a multi-method qualitative study

Pinto, Cathryn; Bristowe, Katherine; Witt, Jana; Davies, Joanna M.; de Wolf-Linder, Susanne; Dawkins, Marsha; Guo, Ping; Higginson, Irene J.; Daveson, Barbara; Murtagh, Fliss E. M.

doi:10.21037/apm.2018.09.02

Publication type:	Article in scientific journal
Type of review:	Peer review (publication)
Title:	Perspectives of patients, family caregivers and health professionals on the use of outcome measures in palliative care and lessons for implementation : a multi-method qualitative study
Authors:	Pinto, Cathryn Bristowe, Katherine Witt, Jana Davies, Joanna M. de Wolf-Linder, Susanne Dawkins, Marsha Guo, Ping Higginson, Irene J. Daveson, Barbara Murtagh, Fliss E. M.
DOI:	10.21037/apm.2018.09.02
Published in:	Annals of Palliative Medicine
Volume(Issue):	7
Issue:	Suppl 3
Page(s):	137
Pages to:	150
Issue Date:	2018
Publisher / Ed. Institution:	AME Publishing
ISSN:	2224-5820 2224-5839
Language:	English
Subjects:	Outcome assessment; Evaluation research; Palliative care; Qualitative research
Subject (DDC):	616: Internal medicine and diseases
Abstract:	Background: Routine use of outcome measures in palliative care is recommended to demonstrate and improve quality of care. The use of outcome measures is relatively recent in UK specialist palliative care services and understanding their use in practice is key to successful implementation. We therefore aimed to explore how patient-centred outcome measures are used in specialist palliative care, and identify key considerations for implementation. Methods: Multi-method qualitative study (semi-structured interviews and non-participant observation). Patients, family caregivers and health professionals were purposively sampled from nine specialist palliative care services (hospice, hospital and community settings) in London, UK. Framework analysis, informed by the Consolidated Framework for Implementation Research (CFIR), was undertaken. Results: Thirty eight interviews and nine observations were conducted. Findings are presented according to the five CFIR domains: (I) intervention: participants highlighted advantages, disadvantages and appropriateness of outcome measures in palliative care; (II) outer setting: policy and national drivers are necessary to encourage use of outcome measures; (III) inner setting: information technology infrastructure, organisational drive, and support from peers and leadership were institutional factors that shaped the use of outcome measures; (IV) individual: clear rationale for using outcome measures and skills to use them in practice were essential; (V) implementation: stepwise introduction of outcome measures, regular feedback sessions, and champions/facilitators were important to strengthen routine use. Conclusions: All CFIR domains need consideration for effective implementation. Outcome data needs to be fed back to and interpreted for professionals in order to improve and sustain outcome data collection, and drive meaningful improvements in palliative care.
URI:	https://digitalcollection.zhaw.ch/handle/11475/13056
Fulltext version:	Published version
License (according to publishing contract):	Licence according to publishing contract
Departement:	School of Health Sciences
Organisational Unit:	Institute of Nursing (IPF)
Appears in collections:	Publikationen Gesundheit

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Pinto, C., Bristowe, K., Witt, J., Davies, J. M., de Wolf-Linder, S., Dawkins, M., Guo, P., Higginson, I. J., Daveson, B., & Murtagh, F. E. M. (2018). Perspectives of patients, family caregivers and health professionals on the use of outcome measures in palliative care and lessons for implementation : a multi-method qualitative study. Annals of Palliative Medicine, 7(Suppl 3), 137–150. https://doi.org/10.21037/apm.2018.09.02

Pinto, C. et al. (2018) ‘Perspectives of patients, family caregivers and health professionals on the use of outcome measures in palliative care and lessons for implementation : a multi-method qualitative study’, Annals of Palliative Medicine, 7(Suppl 3), pp. 137–150. Available at: https://doi.org/10.21037/apm.2018.09.02.

C. Pinto et al., “Perspectives of patients, family caregivers and health professionals on the use of outcome measures in palliative care and lessons for implementation : a multi-method qualitative study,” Annals of Palliative Medicine, vol. 7, no. Suppl 3, pp. 137–150, 2018, doi: 10.21037/apm.2018.09.02.

PINTO, Cathryn, Katherine BRISTOWE, Jana WITT, Joanna M. DAVIES, Susanne DE WOLF-LINDER, Marsha DAWKINS, Ping GUO, Irene J. HIGGINSON, Barbara DAVESON und Fliss E. M. MURTAGH, 2018. Perspectives of patients, family caregivers and health professionals on the use of outcome measures in palliative care and lessons for implementation : a multi-method qualitative study. Annals of Palliative Medicine. 2018. Bd. 7, Nr. Suppl 3, S. 137–150. DOI 10.21037/apm.2018.09.02

Pinto, Cathryn, Katherine Bristowe, Jana Witt, Joanna M. Davies, Susanne de Wolf-Linder, Marsha Dawkins, Ping Guo, Irene J. Higginson, Barbara Daveson, and Fliss E. M. Murtagh. 2018. “Perspectives of Patients, Family Caregivers and Health Professionals on the Use of Outcome Measures in Palliative Care and Lessons for Implementation : A Multi-Method Qualitative Study.” Annals of Palliative Medicine 7 (Suppl 3): 137–50. https://doi.org/10.21037/apm.2018.09.02.

Pinto, Cathryn, et al. “Perspectives of Patients, Family Caregivers and Health Professionals on the Use of Outcome Measures in Palliative Care and Lessons for Implementation : A Multi-Method Qualitative Study.” Annals of Palliative Medicine, vol. 7, no. Suppl 3, 2018, pp. 137–50, https://doi.org/10.21037/apm.2018.09.02.