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Publication type: Article in scientific journal
Type of review: Peer review (publication)
Title: Towards a governance framework for brain data
Authors: Ienca, Marcello
Fins, Joseph J.
Jox, Ralf J.
Jotterand, Fabrice
Voeneky, Silja
Andorno, Roberto
Ball, Tonio
Castelluccia, Claude
Chavarriaga, Ricardo
Chneiweiss, Hervé
Ferretti, Agata
Friedrich, Orsolya
Hurst, Samia
Merkel, Grischa
Molnár-Gábor, Fruzsina
Rickli, Jean-Marc
Scheibner, James
Vayena, Effy
Yuste, Rafael
Kellmeyer, Philipp
et. al: No
DOI: 10.1007/s12152-022-09498-8
Published in: Neuroethics
Volume(Issue): 15
Issue: 2
Page(s): 20
Issue Date: 3-Jun-2022
Publisher / Ed. Institution: Springer
ISSN: 1874-5490
Language: English
Subjects: Brain data; Neurotechnology; Data governance; Neurodata; Regulation
Subject (DDC): 006: Special computer methods
Abstract: The increasing availability of brain data within and outside the biomedical field, combined with the application of artificial intelligence (AI) to brain data analysis, poses a challenge for ethics and governance. We identify distinctive ethical implications of brain data acquisition and processing, and outline a multi-level governance framework. This framework is aimed at maximizing the benefits of facilitated brain data collection and further processing for science and medicine whilst minimizing risks and preventing harmful use. The framework consists of four primary areas of regulatory intervention: binding regulation, ethics and soft law, responsible innovation, and human rights.
Fulltext version: Published version
License (according to publishing contract): CC BY 4.0: Attribution 4.0 International
Departement: School of Engineering
Organisational Unit: Centre for Artificial Intelligence (CAI)
Appears in collections:Publikationen School of Engineering

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Ienca, M., Fins, J. J., Jox, R. J., Jotterand, F., Voeneky, S., Andorno, R., Ball, T., Castelluccia, C., Chavarriaga, R., Chneiweiss, H., Ferretti, A., Friedrich, O., Hurst, S., Merkel, G., Molnár-Gábor, F., Rickli, J.-M., Scheibner, J., Vayena, E., Yuste, R., & Kellmeyer, P. (2022). Towards a governance framework for brain data. Neuroethics, 15(2), 20.
Ienca, M. et al. (2022) ‘Towards a governance framework for brain data’, Neuroethics, 15(2), p. 20. Available at:
M. Ienca et al., “Towards a governance framework for brain data,” Neuroethics, vol. 15, no. 2, p. 20, Jun. 2022, doi: 10.1007/s12152-022-09498-8.
IENCA, Marcello, Joseph J. FINS, Ralf J. JOX, Fabrice JOTTERAND, Silja VOENEKY, Roberto ANDORNO, Tonio BALL, Claude CASTELLUCCIA, Ricardo CHAVARRIAGA, Hervé CHNEIWEISS, Agata FERRETTI, Orsolya FRIEDRICH, Samia HURST, Grischa MERKEL, Fruzsina MOLNÁR-GÁBOR, Jean-Marc RICKLI, James SCHEIBNER, Effy VAYENA, Rafael YUSTE und Philipp KELLMEYER, 2022. Towards a governance framework for brain data. Neuroethics. 3 Juni 2022. Bd. 15, Nr. 2, S. 20. DOI 10.1007/s12152-022-09498-8
Ienca, Marcello, Joseph J. Fins, Ralf J. Jox, Fabrice Jotterand, Silja Voeneky, Roberto Andorno, Tonio Ball, et al. 2022. “Towards a Governance Framework for Brain Data.” Neuroethics 15 (2): 20.
Ienca, Marcello, et al. “Towards a Governance Framework for Brain Data.” Neuroethics, vol. 15, no. 2, June 2022, p. 20,

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