Please use this identifier to cite or link to this item: https://doi.org/10.21256/zhaw-24449
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dc.contributor.authorSpichiger, Frank-
dc.contributor.authorKeller Senn, Anita-
dc.contributor.authorVolken, Thomas-
dc.contributor.authorLarkin, Philip-
dc.contributor.authorKoppitz, Andrea-
dc.date.accessioned2022-03-02T14:55:58Z-
dc.date.available2022-03-02T14:55:58Z-
dc.date.issued2022-02-15-
dc.identifier.issn2509-8020de_CH
dc.identifier.urihttps://digitalcollection.zhaw.ch/handle/11475/24449-
dc.description.abstractBackground: In this article, we report the cultural adaption and translation of the Integrated Palliative Care Outcome Scale for People with Dementia (IPOS-Dem) into a Swiss-German easy language version for proxy assessment of people with dementia living in Swiss nursing homes. The Swiss-German easy language version of the IPOS-Dem was developed and culturally adapted in a six-phase process from the German IPOS-Dem using recommended guidelines.With nursing home staff and laypeople, the conceptual definition and relevance of IPOS-Dem items were established during phase I. Phase II encompassed the completion of forward translations. Independent native speakers blind to the original scale translated and back-translated the Swiss-German easy language version. The resulting IPOS-Dem version was then blindly back-translated in phase III. Experts reviewed all resulting translations in phase IV to produce a pre-final IPOS-Dem version. Finally, the phase V cognitive debriefing involved two focus groups assessing the pre-final IPOS-Dem version. Phase V included cognitive interviews with laypeople (n = 2), family members of those with dementia (n = 4) and staff from different care contexts (n = 12). Results: Using easy language specialists yielded a clinically relevant, comprehensive and understandable translation. In addition, face and content validity for the easy language version were established in the cognitive interviews. Conclusions: With an easy language IPOS-Dem, all frontline staff and family members can be empowered to communicate their observations after caring interactions. Enhanced clinical communication with easy language tools shows the potential for research and clinical applications. In addition, attentive use in scales of easy language communication may foster increased engagement with untrained laypeople in clinical and care research.de_CH
dc.language.isoende_CH
dc.publisherSpringerde_CH
dc.relation.ispartofJournal of Patient-Reported Outcomesde_CH
dc.rightshttp://creativecommons.org/licenses/by/4.0/de_CH
dc.subjectPROMSde_CH
dc.subjectTranslationde_CH
dc.subjectValidation studyde_CH
dc.subjectDementiade_CH
dc.subject.ddc610.73: Pflegede_CH
dc.subject.ddc616.8: Neurologie und Krankheiten des Nervensystemsde_CH
dc.titleIntegrated Palliative Care Outcome Scale for People with Dementia : easy language adaption and translationde_CH
dc.typeBeitrag in wissenschaftlicher Zeitschriftde_CH
dcterms.typeTextde_CH
zhaw.departementGesundheitde_CH
zhaw.organisationalunitInstitut für Public Health (IPH)de_CH
dc.identifier.doi10.1186/s41687-022-00420-7de_CH
dc.identifier.doi10.21256/zhaw-24449-
zhaw.funding.euNode_CH
zhaw.issue14de_CH
zhaw.originated.zhawYesde_CH
zhaw.publication.statuspublishedVersionde_CH
zhaw.volume6de_CH
zhaw.publication.reviewPeer review (Publikation)de_CH
zhaw.webfeedAngewandte Gerontologiede_CH
zhaw.author.additionalNode_CH
zhaw.display.portraitYesde_CH
Appears in collections:Publikationen Gesundheit

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Spichiger, F., Keller Senn, A., Volken, T., Larkin, P., & Koppitz, A. (2022). Integrated Palliative Care Outcome Scale for People with Dementia : easy language adaption and translation. Journal of Patient-Reported Outcomes, 6(14). https://doi.org/10.1186/s41687-022-00420-7
Spichiger, F. et al. (2022) ‘Integrated Palliative Care Outcome Scale for People with Dementia : easy language adaption and translation’, Journal of Patient-Reported Outcomes, 6(14). Available at: https://doi.org/10.1186/s41687-022-00420-7.
F. Spichiger, A. Keller Senn, T. Volken, P. Larkin, and A. Koppitz, “Integrated Palliative Care Outcome Scale for People with Dementia : easy language adaption and translation,” Journal of Patient-Reported Outcomes, vol. 6, no. 14, Feb. 2022, doi: 10.1186/s41687-022-00420-7.
SPICHIGER, Frank, Anita KELLER SENN, Thomas VOLKEN, Philip LARKIN und Andrea KOPPITZ, 2022. Integrated Palliative Care Outcome Scale for People with Dementia : easy language adaption and translation. Journal of Patient-Reported Outcomes. 15 Februar 2022. Bd. 6, Nr. 14. DOI 10.1186/s41687-022-00420-7
Spichiger, Frank, Anita Keller Senn, Thomas Volken, Philip Larkin, and Andrea Koppitz. 2022. “Integrated Palliative Care Outcome Scale for People with Dementia : Easy Language Adaption and Translation.” Journal of Patient-Reported Outcomes 6 (14). https://doi.org/10.1186/s41687-022-00420-7.
Spichiger, Frank, et al. “Integrated Palliative Care Outcome Scale for People with Dementia : Easy Language Adaption and Translation.” Journal of Patient-Reported Outcomes, vol. 6, no. 14, Feb. 2022, https://doi.org/10.1186/s41687-022-00420-7.


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