Participation in medical decision-making across Europe : an international longitudinal multicenter study

Bär Deucher, Arlette; Hengartner, Michael Pascal; Kawohl, Wolfram; Konrad, Jana; Puschner, Bernd; Clarke, Eleanor; Slade, Mike; Del Vecchio, Valeria; Sampogna, Gaia; Égerházi, Anikó; Süveges, Ágnes; Krogsgaard Bording, Malene; Munk-Jørgensen, Pøvl; Rössler, Wulf; CEDAR study group

doi:10.1016/j.eurpsy.2016.02.001

Publication type:	Article in scientific journal
Type of review:	Peer review (publication)
Title:	Participation in medical decision-making across Europe : an international longitudinal multicenter study
Authors:	Bär Deucher, Arlette Hengartner, Michael Pascal Kawohl, Wolfram Konrad, Jana Puschner, Bernd Clarke, Eleanor Slade, Mike Del Vecchio, Valeria Sampogna, Gaia Égerházi, Anikó Süveges, Ágnes Krogsgaard Bording, Malene Munk-Jørgensen, Pøvl Rössler, Wulf CEDAR study group
DOI:	10.1016/j.eurpsy.2016.02.001
Published in:	European Psychiatry
Volume(Issue):	35
Page(s):	39
Pages to:	46
Issue Date:	May-2016
Publisher / Ed. Institution:	Elsevier
ISSN:	0924-9338 1778-3585
Language:	English
Subjects:	Clinical decision-making; Patient participation; Multicenter study; Severe mental illness
Subject (DDC):	616.89: Mental disorders, clinical psychology and psychiatry
Abstract:	Background: The purpose of this paper was to examine national differences in the desire to participate in decision-making of people with severe mental illness in six European countries. Methods: The data was taken from a European longitudinal observational study (CEDAR; ISRCTN75841675). A sample of 514 patients with severe mental illness from the study centers in Ulm, Germany, London, England, Naples, Italy, Debrecen, Hungary, Aalborg, Denmark and Zurich, Switzerland were assessed as to desire to participate in medical decision-making. Associations between desire for participation in decision-making and center location were analyzed with generalized estimating equations. Results: We found large cross-national differences in patients’ desire to participate in decision-making, with the center explaining 47.2% of total variance in the desire for participation (P < 0.001). Averaged over time and independent of patient characteristics, London (mean = 2.27), Ulm (mean = 2.13) and Zurich (mean = 2.14) showed significantly higher scores in desire for participation, followed by Aalborg (mean = 1.97), where scores were in turn significantly higher than in Debrecen (mean = 1.56). The lowest scores were reported in Naples (mean = 1.14). Over time, the desire for participation in decision-making increased significantly in Zurich (b = 0.23) and decreased in Naples (b = -0.14). In all other centers, values remained stable. Conclusions: This study demonstrates that patients’ desire for participation in decision-making varies by location. We suggest that more research attention be focused on identifying specific cultural and social factors in each country to further explain observed differences across Europe.
URI:	https://digitalcollection.zhaw.ch/handle/11475/2273
Fulltext version:	Published version
License (according to publishing contract):	Licence according to publishing contract
Departement:	Applied Psychology
Organisational Unit:	Psychological Institute (PI)
Appears in collections:	Publikationen Angewandte Psychologie

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Bär Deucher, A., Hengartner, M. P., Kawohl, W., Konrad, J., Puschner, B., Clarke, E., Slade, M., Del Vecchio, V., Sampogna, G., Égerházi, A., Süveges, Á., Krogsgaard Bording, M., Munk-Jørgensen, P., Rössler, W., & CEDAR study group. (2016). Participation in medical decision-making across Europe : an international longitudinal multicenter study. European Psychiatry, 35, 39–46. https://doi.org/10.1016/j.eurpsy.2016.02.001

Bär Deucher, A. et al. (2016) ‘Participation in medical decision-making across Europe : an international longitudinal multicenter study’, European Psychiatry, 35, pp. 39–46. Available at: https://doi.org/10.1016/j.eurpsy.2016.02.001.

A. Bär Deucher et al., “Participation in medical decision-making across Europe : an international longitudinal multicenter study,” European Psychiatry, vol. 35, pp. 39–46, May 2016, doi: 10.1016/j.eurpsy.2016.02.001.

BÄR DEUCHER, Arlette, Michael Pascal HENGARTNER, Wolfram KAWOHL, Jana KONRAD, Bernd PUSCHNER, Eleanor CLARKE, Mike SLADE, Valeria DEL VECCHIO, Gaia SAMPOGNA, Anikó ÉGERHÁZI, Ágnes SÜVEGES, Malene KROGSGAARD BORDING, Pøvl MUNK-JØRGENSEN, Wulf RÖSSLER und CEDAR study group, 2016. Participation in medical decision-making across Europe : an international longitudinal multicenter study. European Psychiatry. Mai 2016. Bd. 35, S. 39–46. DOI 10.1016/j.eurpsy.2016.02.001

Bär Deucher, Arlette, Michael Pascal Hengartner, Wolfram Kawohl, Jana Konrad, Bernd Puschner, Eleanor Clarke, Mike Slade, et al. 2016. “Participation in Medical Decision-Making across Europe : An International Longitudinal Multicenter Study.” European Psychiatry 35 (May): 39–46. https://doi.org/10.1016/j.eurpsy.2016.02.001.

Bär Deucher, Arlette, et al. “Participation in Medical Decision-Making across Europe : An International Longitudinal Multicenter Study.” European Psychiatry, vol. 35, May 2016, pp. 39–46, https://doi.org/10.1016/j.eurpsy.2016.02.001.