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Publication type: Article in scientific journal
Type of review: Peer review (publication)
Title: Patient and public involvement in palliative care research : what works, and why? A qualitative evaluation
Authors: Johnson, Halle
Ogden, Margaret
Brighton, Lisa Jane
Etkind, Simon Noah
Oluyase, Adejoke O
Chukwusa, Emeka
Yu, Peihan
de Wolf-Linder, Susanne
Smith, Pam
Bailey, Sylvia
Koffman, Jonathan
Evans, Catherine J
et. al: No
DOI: 10.1177/0269216320956819
Published in: Palliative Medicine
Volume(Issue): 35
Issue: 1
Pages: 151
Pages to: 160
Issue Date: 11-Sep-2020
Publisher / Ed. Institution: Sage
ISSN: 0269-2163
Language: English
Subjects: Palliative care; Consumer involvement; Evaluation research; Patient involvement
Subject (DDC): 610.73: Nursing
Abstract: Background: Public involvement is increasingly considered a prerequisite for high-quality research. However, involvement in palliative care is impeded by limited evidence on the best approaches for populations affected by life-limiting illness. Aim: To evaluate a strategy for public involvement in palliative care and rehabilitation research, to identify successful approaches and areas for improvement.Design: Co-produced qualitative evaluation using focus groups and interviews. Thematic analysis undertaken by research team comprising public contributors and researchers. Setting/participants: Researchers and public members from a palliative care and rehabilitation research institute, UK. Results: Seven public members and 19 researchers participated. Building and maintaining relationships, taking a flexible approach and finding the ‘right’ people were important for successful public involvement. Relationship building created a safe environment for discussing sensitive topics, although public members felt greater consideration of emotional support was needed. Flexibility supported involvement alongside unpredictable circumstances of chronic and life-limiting illness, and was facilitated by responsive communication, and opportunities for in-person and virtual involvement at a project- and institution-level. However, more opportunities for two-way feedback throughout projects was suggested. Finding the ‘right’ people was crucial given the diverse population served by palliative care, and participants suggested more care needed to be taken to identify public members with experience relevant to specific projects. Conclusion: Within palliative care research, it is important for involvement to focus on building and maintaining relationships, working flexibly, and identifying those with relevant experience. Taking a strategic approach and developing adequate infrastructure and networks can facilitate public involvement within this field.
Fulltext version: Published version
License (according to publishing contract): CC BY 4.0: Attribution 4.0 International
Departement: Health Professions
Organisational Unit: Institute of Nursing (IPF)
Appears in collections:Publikationen Gesundheit

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