Publication type: Conference poster
Type of review: Peer review (abstract)
Title: Development of a set of ASAS quality standards for adults with axial spondyloarthritis
Authors: Kiltz, Uta
Landewé, Robert B.M.
van der Heijde, Desirée
Rudwaleit, Martin
Dougados, Maxime
Akkoc, Nurullah
Boonen, Annelies
Brandt-Juergens, Jan
Caroon, Philippe
Gossec, Laure
Jongkees, Merryn
Machado, Pedro
Marzo-Ortega, Helena
Moltó, Anna
Navarro-Compán, Victoria
Niedermann Schneider, Karin
Sampaio-Barros, Percival D.
Slobodin, Gleb
Filip van den Bosch, Filip
van Tubergen, Astrid
van Weely, Salima
Weisman, Michael
Wiek, Dieter
Braun, Jürgen
et. al: No
Conference details: Annual European Congress of Rheumatology EULAR 2019, Madrid, 12-15 June 2019
Issue Date: 13-Jun-2019
Language: English
Subject (DDC): 616.7: Diseases of musculoskeletal system and orthopaedics
Abstract: Background: There is wide variation in the management of patients with axial spondyloarthritis (axSpA) worldwide with significant unmet needs such as delayed diagnosis. A major goal of the international organization Assessment of SpondyloArthritis international Society (ASAS) is to improve quality of care and health outcomes in axSpA. One way to achieve this is to define quality standards (QS) in order to identify resources and processes which may need to be optimized. Such standards must be specific, measurable, aspirational and achievable in daily care. Objectives: To develop ASAS QS to ultimately improve the quality of care for adults with axSpA. Methods: The ASAS QS group, established in 2015, developed a step-wise approach starting with (I) an overview and open discussions resulting in a proposal for possible key areas for quality improvement. Thereafter, (II) ASAS members and invited patients discussed and commented on a provisional list via a web-based survey with the possibility to propose additional key areas for quality improvement. (III) The complete list was then evaluated by ASAS members and invited patients. (IV) Then, the ASAS QS group prioritized key areas for which quality statements and measures are to be developed, and (V) phrased QS for the most important key areas. Finally (VI), a draft version was commented on, discussed and finally agreed by the ASAS members at the Annual ASAS Meeting 2019. Results: The ASAS QS group, consisting of 20 rheumatologists, 2 physiotherapists and 2 patients, provided 34 potentially key areas for quality improvement which were commented by 140 participants (86 physicians, 42 patients). Within that process 3 new key areas were proposed and all 37 key areas for improvement were again evaluated by 120 participants (86 physicians, 29 patients). Five key areas were identified to be most important to phrase QS: referral, rheumatologic assessment, treatment, education/self-management and comorbidities. Altogether, 9 QS, each accompanied by a rationale and a measure (figure), were endorsed by ASAS. Conclusion: ASAS successfully developed the first QS set for improvement of health care provided for adults with axSpA. All QS are achievable in daily care in an optimized situation and intend to minimize variation in quality of care. It is emphasized that ASAS is well aware that all QS are ideal visions of an optimal care which may currently not be realistic in many countries.
Fulltext version: Published version
License (according to publishing contract): Licence according to publishing contract
Departement: School of Health Sciences
Organisational Unit: Institute of Physiotherapy (IPT)
Appears in collections:Publikationen Gesundheit

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